Monday, January 25, 2010

Back in the Saddle

We are getting back into the swing of things. Today was filled with therapy, doctors, and GOOD NEWS! I love good news!

I discussed my concerns with Liesa at PT today. The prognosis looks good. She worked on some muscle groups, performing some tests on him, and feels his weakness is not pathological. Basically that means that he should regain everything he's lost as he continues to heal from his illness. This was a big concern, since it seems he loses something major after a big illness (7mos pneumonia/RSV - hearing loss, 15 mos pneumonia - motor skill loss, 21 mos pneumonia - nystagmus and loss of eye sight...). The concern here is that whatever neurological condition he has might be degenerative and result in continued losses over time. Of course, we are praying this is not the case, but we won't really know until he makes it through some milestones. He has had several boughts of pneumonia with no apparent loss, but we just have to wait and see. It always makes me nervous. Anyway, PT was our first good news.

Booth testing went great today! William's threshholds are great, his hearing is perfect*, and his understanding is impressive. Even his speech is coming along!

The last visit was to William's CI surgeon. It also went very well. William's recent ear infection and drainage has completely cleared up and left no residual damage. Implants are exactly as they should be and our recheck appointments have now moved to YEARLY! Wooo-hooo!

All in all, a good day! Praise the Lord!

*just to clarify: when I say William has perfect hearing, this is only with his processors on. The cochlear implants did not heal his deafness, only make a way for him to receive sound since his cochlea does not work on its own. He is, and will always be, profoundly deaf, but is able to hear when he wears his processors. When he has them off, he gets absolutely no sound at all.

"Behold, I will do a new thing; now it shall spring forth; shall ye not know it? I will even make a way in the wilderness, and rivers in the desert." Isaiah 43:19


  1. Arizona ConnectionJanuary 26, 2010 at 9:17 AM

    Wonderful, wonderful posting. Great news regarding William. He is our "special" one and continues to amaze us all. Not only is he back in the saddle, hes ready to ride! Yea William.
    God Bless,

  2. What great news! He's a persistent little guy, and he's made amazing recoveries after all of the setbacks. My prayers remain with him, to keep him strong each day!


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