Tuesday, May 25, 2010

Taking a Break

I won't be blogging for awhile - working on the new house. We're having everything shut off tomorrow and won't reinstate Internet for a month or so. For those family members who check in on William, I'll be sure to call if there is anything noteworthy - otherwise, it's business as usual! His new braces should be up and running at the end of this week, so read up in July if you want to see how he's done with them!
"Unless the LORD had been my help, my soul had almost dwelt in silence." Psalm 94:17

Tuesday, May 11, 2010

Another Test Down

The swallow study came back normal. It was quite interesting to watch. Sarah set up the video so she would be able to include some of it in his film, but she didn't get to stay in there with us to watch because of the radiation. It was kind of neat to see the food going down his throat on x-ray.

We bought a house! We are working on it this month and planning on moving in by June 1st.
Sarah is working fast and furious to complete her movie by the June 1st deadline! We'll see...
William's long leg braces came in, but there is a major problem with them and we have to send them back in. I don't know how long it will be before those are up and running.
Other than that, it's life as usual: therapies, school, doctors. I think we'll take a few weeks off school. The girls have been working hard...they deserve a break!

"Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls." Matthew 11:29

Saturday, May 1, 2010

What do you do with 100 hours?

William got his vest on January 16th of this year, just 3 and 1/2 months ago. At the suggestion of the respiratory therapist, we began his sessions with "two 20 minute sessions daily or four 20 minute sessions if ill," but at the request of his pulmonologist, we have been doing "four 30 minute sessions daily or four 40-48 minutes sessions if ill." As you might suppose, this takes up a great deal of his time. It has proven to be very beneficial, but not as perfect as we had hoped. He is now waiting for another machine to assist the Vest, called the "Cough Assist." It will be used in conjunction with the all of the equipment he already has. We are praying that all of these things together will keep his lungs clear. We realize how important airway clearance is for his future health.
Last night he hit a milestone: 100 hours!
"The Spirit of God hath made me, and the breath of the Almighty hath given me life." Job 33:4