Friday, January 30, 2009

New Development

About 3 weeks ago, William had a fever and slight cold. Although he got better quickly and seems well, his right eye developed a slight shake. It has gradually gotten worse. It is now shaking hard and fast continually and his left eye started up yesterday. I learned from his physical therapist, Kerri, that he has what is called "nystagmus." I do not like what I've been reading about this condition. I spoke with his surgeon and eye specialist. They will both be seeing him on Wednesday. It looks like we'll be doing another CT Scan after all. Thank you all for your continued prayers.

"When I am afraid, I will trust in You." Psalm 56:3

Tuesday, January 6, 2009

On Being William...

ahhh...airplane with Daddy

building bridges

"I heard that!"

just having fun

big enough to nebulize without help

anyone for a kiss?

wrestling with Seth and Sayer
"And they shall put My name upon the children of Israel; and I will bless them." Numbers 6:27

Friday, January 2, 2009


Here are a couple of pictures of William getting his blood drawn (again). He's such a brave little guy! His iron came up a whole point since his first test in November, but he is still below normal. All of the rest of his tests have come back normal. His doctor is sending him to a pediatric oncology/hematology specialist. Please keep praying!
"Though I walk in the midst of trouble, thou wilt revive me: thou shalt stretch forth thine hand against the wrath of mine enemies, and thy right hand shall save me. The LORD will perfect that which concerneth me: thy mercy, O LORD, endureth forever: forsake not the works of thine own hands." Psalm 138:7-8

Up to Date

Just to bring everyone up to speed: William has many doctors and therapists who are working with him and we have been more than pleased with each one of them. Since we found out about his deafness our life has been a whirlwind of appointments. After he received the bilateral cochlear implant and was activated, we started working on some other possibilities of things that could be wrong. From asthma and weak lungs, to low muscle tone, loss of head control, and not walking - there's been a lot that has concerned us. He's had testing and bloodwork, testing and bloodwork, get the picture. We so appreciate the prayers from all of you. Here is a pictorial overview of things so far:

The birth of our precious baby boy

RSV/Pneumonia - 1st hospital trip

William turns 1!

The evening we returned home from CA William lost all control of his head - 2nd hospital trip

sound booth testing not great - trying hearing aides

Testing, tubes in ears, CT Scan, EEG, ABR, and so on...William was diagnosed with profound hearing loss and we decided to proceed with cochlear implants.

having fun in the waiting room before surgery

at home after surgery

removing the bandages

activating the implants - day 1

activating the implants - day 2
William looks around everyone to see the dog making noise!

18 months old!

His first ear infection was a pretty severe infection in the mastoid cavity.

It led to another hospital stay.

Feeling better!

Tube removal, new tubes, more bloodwork, more testing....He's still going through a lot!
"Before I formed thee in the belly I knew thee; and before thou camest forth out of the womb, I sanctified thee, and I ordained thee a prophet unto the nations." Jeremiah 1:5