Wednesday, May 6, 2009

Goofing Around

This picture is of William laughing at Mommy who is trying to do the hula hoop, but not succeeding very well! He got the biggest kick out of watching me!
There's not really much to update. We saw the geneticist a couple of weeks ago. He confirmed that William has a mitochondrial disease. Now we have to decide whether to keep testing to find out which one. Since there are no cures for these diseases, knowing which one will only tell us what to expect in the future. We are going to wait until after we see the Pediatric Neuro Ophthalmologist on May 15 to make any decisions.
By the way, thanks for the ideas on the water play. I even received a link to a video on YouTube about parents who "waterproof" their child's processors. Very creative! Michael and I discussed some ideas and came up with something we think will work for him. We had to place a couple of orders online, but I'll make a post on it when we get it all working.
After waiting 4 months for an appointment for the most recent specialist, we only have 9 days left! I can't wait to go!
What man of you, having a hundred sheep, if he lose one of them, doth not leave the ninety and nine in the wilderness, and go after that which is lost, until he find it? Luke 15:4

1 comment:

  1. Arizona ConnectionMay 8, 2009 at 9:32 AM

    By the picture, you were really tickling William's funny bone! He has one of those smiles that lights up his face and makes you want to join in with his laughter. As you have stated, your appointment with the specialist is finally within the near future.
    I hope he will be able to give you answers that will help. As you know, William continues to be in my prayers. And the Good Lord hears and knows all. Await your next posting.
    God Bless
    Jill Andrews


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