Thursday, June 4, 2015

William's checkup

I still have 2 posts to make regarding William's Make A Wish trip, but I'm going to take a little break from the fun stuff.  Yesterday, we took William to his Pulmonologist for his regular 3 month check up.  William has been doing so well, I guess I expected an "alright,-very-good-see-you-in-3-months" response.  Instead we got a "hey-let's-do-this-test-and-run-another-X-ray" response.  Long story short, William's lungs are hyper-inflated and he has a new abnormality on his chest wall.  It is likely the result of the ataxia and lack of muscle development, which means it's just as likely to worsen, making breathing continually more difficult.  We are supposed to "watch it," though there's really nothing to be done for it.  We so appreciate all of our dear friends who continually pray for William, even when things are looking good.  God is good, all the time...