Thursday, February 5, 2009

A Day of Doctors

Well, yesterday was quite the long day, but William was such a trooper! We left the house at 6:30am and arrived at our first appointment at 9:00am. First up was Dr. Scott where we found out that William's optic nerves are pale and he is now near-sighted. This is a change from August when everything looked good. He is referring us to a pediatric neuro ophthalmologist after the CT scan is done.
After that we saw Dr. Kasulis for a mapping session. William was very tired and didn't really like the booth testing, but responded better for mapping.
Next up was Dr. Domek for both William and Sherrod. Sherrod is doing great with her pump - she can even change it by herself now! Sharon (the diabetes educator and wife to Dr. Domek) said that Sherrod is the youngest patient she's had who can do it without help! On to William: Dr. Domek lined out for us all of his issues, looking for a common thread. It all points to the Central Nervous System and he thinks we're probably looking at some sort of mitochondrial disease and the other doctors are in agreement.
After lunch at the hospital, we were on to see Dr. Wood. This appointment was right in the middle of William's nap so I felt really bad that he had to wake up with someone poking on him, but I'm so glad that his ears are looking good! We also discussed some options that are available, should an MRI be required (for those of you who aren't aware: William can't have an MRI since he has magnets in his head). Hopefully, the CT scan will be sufficient.
Next we were off to his last appointment of the day with Dr. Norman. She was finally able to see the "head dropping" thing, not because he did it in the office, but because we videoed it earlier when he was doing it at his mapping session. I was so glad we got it on tape! She wanted to draw several labs so she also consulted with Dr. Domek and Dr. Ross and the three of them had input into the labs so that he would only have to be stuck once. That was so nice! I'm glad we could do it in one trip for him and not three different times.
We are so blessed by our doctors. God's hand has surely guided us to each one. Mike and I truly appreciate the way they are all working together for William's benefit. They've also all been great about scheduling our appointments together and around each other. We caught some of them on camera yesterday, so I thought I'd share some pictures. We missed Dr. Domek, but we'll catch him next time!
Thank you so much for your prayers for our precious baby. We appreciate your love and care for our family!

Dr. Scott
Dr. Kasulis

Tired out from a long day and it's not over yet
Dr. Wood

Dr. Norman
another blood draw
Yeah! The day is finally over - let's go home!

"But thanks be to God, which put the same earnest care into the heart of Titus for you." 2 Corinthians 8:16


  1. Arizona ConnectionFebruary 5, 2009 at 9:25 PM

    I am so proud of William! What a very long day and yet he was able to share his wonderful and beautiful smile with everyone! I realize more testing will be necessary. This will be stressful on everyone, especially William but he seems to have such a strong joyful personality.
    His team of doctors are truely a gift. Their availability all on the same day was also another wonderful gift. Your posting of the days events are wonderful. I hope you will be able to keep us posted even though your time most be spoken for. When does William go back to see the doctors or is more testing required first?
    Thank you for sharing Williams journey. My prayers are with William AND his family.
    God Bless
    Jill Andrews

  2. William,
    You were such a brave young man today! I am very happy to hear that you were able to see all your doctors in one day!

    Uncle Ben and I love you very much and you are always in our prayers!

    Aunt Sunny

  3. Jill,
    This month is pretty full of doctors and therapy. I pray that we will find something out through this last round of blood work and not have to do more testing, but he is scheduled for a CT scan in a little over a week. He also has a hematology appointment next week, so we'll see. Thank you so much for your prayers and encouraging comments. The girls check their blog everyday for comments and love to get them!


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