William has been off of the bi-pap since 5:00 last night. He did great through the night, althought we almost put him back on several times. He has to maintain OS 90 or above to stay off. He's had a few brief dips, but has managed to pull back up pretty quickly. Lung is looking much better, but he still has a significant amount of atelectasis that must be completely cleared before release. Dr isn't keen on moving him out of ICU and said we will start discussing that when he's been off the breathing machine for a minimum if 72 hours. He's getting up to walk 4x a day for about 5 minutes each. We're trying to increase that time. Speech therapist will be in daily, as feeding is much better, but still having issues. Not with choking or gagging, just with eating in general.
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"Cause me to hear Your lovingkindness in the morning, for in You do I trust; Cause me to know the way in which I should walk, for I lift up my soul to You." Psalm 143:8
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- CAUSE ME TO HEAR
- What began as updates of William's daily life as seen through the eyes of his mother: about deafness and learning to hear with cochlear implants, blindness, breathing issues, mobility, and more...became one family learning to walk through their deepest sorrow when William flew home to heaven on October 18, 2015.
William's Videos
Our Family May 2015
Our Family Thanksgiving 2021
Abbreviations I use:
AVT - Auditory/Verbal therapy
PT - Physical therapy
OMST - Oral Motor Sensory therapy
LVT - Low Vision therapy
OT - Occupational therapy
E-Stim - electrical stimulation
AVT - Auditory/Verbal therapy
PT - Physical therapy
OMST - Oral Motor Sensory therapy
LVT - Low Vision therapy
OT - Occupational therapy
E-Stim - electrical stimulation
Our Family Blogs
"Then shall the righteous shine forth as the sun in the kingdom of their Father. Who hath ears to hear, let him hear."
Matthew 13:43
Matthew 13:43