We leave for Mayo tomorrow for a week of testing on our little William. The RPGR test has not come in yet and will not be in until the end of the month. One doctor is still convinced that this is what William has, even though my retina is healthy. I won't post a lengthy explanation, but it has something to do with me not being a carrier and William having a new mutation.
The possibility of needing to do an MRI upon our return is increasingly high. If nothing is found at Mayo that seems to be our only recourse.
We are so thankful for the many well wishes and prayers on our behalf. William continues to steal our hearts away moment by moment. He is funny and charming and sweet and tender. We are hopefuly that there will be answers for him at Mayo.
"O LORD, I know that the way of man is not in himself: it is not in man that walketh to direct his steps." Jeremiah 10:23